N E W S
Updated: 24-Dec-01
News does not reflect or imply InternAUT views. Links marked
open in new window.
Pretending to be Normal: Living with Asperger's Syndrome -- Liane Holliday Willey describes her life with AS from the inside.
Autism and Asperger Syndrome, by Uta Frith -- the standard work on AS. Including Hans Asperger's original paper.
M E N U
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The names below are listed in alphabetical order. Please let me
know of anything ASAP that should be added, changed, or removed! Thanks.
- UNITED STATES OF AMERICA
- Jim Gonsalves and Mary Fowler <mmf1@ix.netcom.com>, California
Would like to help with publicity and on-line communications.
Long history of advocating for developmental and other disabilities (since 1976); involvement with organizations such as TASH, Cal-TASH, Alameda County Developmental Disabilities Council, Collaborating Agencies Responding to Disasters (CARD), ADAPT, People First. - Ben Dorman and Catriona Johnson <catben@very.smart.net>, Washington D.C.
We are the volunteer webmasters for the Autism Society of America (ASA). (In fact, despite connection Ben is a Brit and Catriona a Canuck living in the Washington D.C. area). We have a 4-year old, Asher, with autism.
We think we can help this outfit of 18,000 members or so help Autism Day - especially on the Internet, where we have some influence. - Carol L. Myron <clm@injersey.com>, New Jersey
I am the Mommy of Jeremy. He is 3.5 years old and PDD-NOS (Autistic). I would love to help out with International Autism Day. I Live in New Jersey and can help out on a local level here. I will forward information to COSAC (New Jersey Center for Outreach and Services for the Autism Community) regarding International Autism Day. I recently went to my local chapter meeting and mentioned it. No one seem to know about it but were quite interested. Anything else I can do to help, please let me know. - Jerry Newport <gnewport@medicine.medsch.ucla.edu>
Public advocate of autistics; recently interviewed in 60 Minutes. Diagnosed Asperger's Syndrome. Jerry and his wife Mary have a committment from Steven Spielberg and Dreamworks to produce a movie at some date in the future.
They have a homepage at <http://www.geocities.com/Hollywood/5548/>. - Angela M. Peralta <AMPera@aol.com>, New York
Hi, my name is Angela M. Peralta, COTA. I provide occupational therapy services to children (0-3 years) with autism.
I have been involved with providing home care, center based (school based) programs. I have also been involved in curriculum development for early intervention in NYC.
I am not yet sure what I will be doing on Autism Day, however, I am forwarding information on subscription to all the parents of the children I service. - Chellen Wright <cwrig@tznet.com>, Central Wisconsin
I am a mother of a 10 year old son with autism. I'm also help other parents of children with autism & PDD get the help that they feel is right for their child. I'm a member of the ASA, as well as the state chapter. I would like to help in any way I can.
I would like to help get the word out to the general public what autism is.
I would like to help with the Peer tutoring, if you need someone to start this, I would be interested; just point me in the right direction.
- Jim Gonsalves and Mary Fowler <mmf1@ix.netcom.com>, California
- UNITED KINGDOM
- Darren Eastwood <darren_athome@globalnet.co.uk>
I work for a company called Angevin Ltd in the UK. We care for people with autism and other related ailments. I've been working for them for 8 months now and am wondering why I haven't done this sort of work before. I love it. The company is opening a new house in the beginning of next year which will specialize in autism and Asperger's syndrome only. I've applied for a job there and am keeping my fingers crossed for the job. - Susan MacRow-Hill <S.J.MacRow-Hill@exeter.ac.uk>, Exeter, Devon
Susan wrote the excellent proposal that will be submitted to the next Society for Disability Studies conference. Here is her personal info:
"I am currently studying for a Masters at the University of Exeter. I am particularly interested in the problems of evaluating treatments for Autism, and the difficulties associated with assessing effectiveness on an individual basis.
- Darren Eastwood <darren_athome@globalnet.co.uk>
- CANADA
- Peter Zwack <sqa@osiris.phy.uqam.ca> or <zwack.peter@UQAM.CA>
President of the Quebec Society for Autism.
- Dick Sobsey <Dick.Sobsey@UAlberta.CA>, Edmonton, Alberta
Director of the JP Das Developmental Disabilities Centre at the university of Alberta; researcher on violence against people with disabilities and other related topics. His son has a severe developmental disability and his cousin has autism.
"because much of my work has to do with abuse, i am particularly interested in efforts to increase social acceptance and decrease crimes against people with autism. i am not sure if that should be an explicit part of IAD but think that any effort to promote a positive image will help decrease abuse. if it is a part of what we do, it is a part that i can help with."
- Peter Zwack <sqa@osiris.phy.uqam.ca> or <zwack.peter@UQAM.CA>
- MEXICO
- Ernesto Diesmartinez <ernesto@informacion.ccs.net.mx>
In Mexico there's no big organizations related with autism. In Mexico City there's two organizations of parents only are working in Mexico City, not in all the country. In Culiacan --where I live, in the Pacific Coast-- we have the ASA (Asociacion Sinaloense de Autismo: Sinaloa's Autism Society) but also is little.
So, how can I help in the A-day?. Well, I'm write in several newspapers in Mexico. I'm a film critic and also I work writing about science in newspapers. In fact, I've been writing some articles about autism in the past weeks. I work in the Centro de Ciencias de Sinaloa (Sinaloa's Science Center), an educacional-science organization. In the Centro de Ciencias de Sinaloa, I think, we can do conferences, show movies, sell books, all related with autism. Well, this was only an idea...
- Ernesto Diesmartinez <ernesto@informacion.ccs.net.mx>
- AUSTRALIA
- Tony Langdon <tlang@freeway.apana.org.au>
Diagnosed Asperger's Syndrome; participates in the discussion on the a-day list. Tony has a home page at <http://quest.apana.org.au/~tlang/>.
- Tony Langdon <tlang@freeway.apana.org.au>
- FRANCE
- Paul Trehin <ptrehin@vnet.ibm.com>
or <Trehincp@aol.com>, Riviera
Father of Gilles, 25 years old, very independent autistic adult.
I participate in two parent societies:
In France: UNAPEI, which is a parent society regrouping several categories of people with mental handicaps. Among them, severely handicapped autistic children, adolescents and adults. I am a member of the board of directors.
At the European level, I represent UNAPEI at the AUTISM EUROPE parent society. Autism Europe's next general assembly is on November 22-23 in Germany. I plan to announce the A-Day project there. I did announce it at UNAPEI and it was well received.
In these parent societies, very few independent autistic adults are participating. However, there is a beginning of activity with regard to self advocacy.
- Paul Trehin <ptrehin@vnet.ibm.com>
or <Trehincp@aol.com>, Riviera
- THE NETHERLANDS
- Martijn Dekker <martijn@inlv.demon.nl>
World-wide promotion of the event. Listowner of the a-day mailing list, the world-wide Internet discussion forum of InternAUT.
Will hold a presentation about InternAUT at the SDS conference on May 22 to 25 in Minneapolis, Minnesota, USA. - Ida Koelstra <mhovens@worldonline.nl>
has contacted the Dutch Autism Society about this idea, will contact the media. More ideas will follow.
- Martijn Dekker <martijn@inlv.demon.nl>
- OTHER COUNTRIES?
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We very much need participants from all the countries not listed here (and
we equally welcome participants from countries already listed here). Please
join by clicking on "How to join!" on the left. Thanks!